Links
Government /Institutional Agencies & Organizations
International Patient Organizations
Members
National Patient Organizations
Other Organizations
Publications of Interest
Government /Institutional Agencies & Organizations
- Belgium – Ministry for Social Affairs, Health and Environment
- Denmark – Danish Medicines Agency
- Europe - European Center for Disease Prevention and Control
- Europe - European Commission
- Europe - European Commission's Directorate-General for Enterprise and Industry
- Europe - European Directorate for the Quality of Medicines and Healthcare
- Europe – Council of Europe
- Europe – Council of the European Union
- Europe – Europa: The European Union Online
- Europe – European Commission's Health and Consumer Protection Direcorate General (DG Sanco)
- Europe – European Medicines Agency
- Europe – European Parliament
- Europe – The European Pharmacopoeia
- Finland – National Agency for Medicines
- France - Haute Autorité de Santé
- France - Ministère de la Santé et des Solidarités
- France – Agence Française de Securite Sanitaire des Produits de Sante
- France – Institut National de la Transfusion Sanguine
- Germany – Bundesinsitut fur Arzneimmittel und Medizinprodukte (BfArM)
- Germany – Bundesministerium für Gesundheit
- Germany – Bundesverband der Pharmazeutischen Industrie
- Germany – Paul Erlich Institut
- Germany – Verband Forschender Arzneimittelhersteller
- Ireland, Republic of – Irish Medicines Board
- Italy – Ministry of Health
- Netherlands – Medicines Evaluation Board
- Portugal – INFARMED, Instituto Nacional de Farmaci e do Medicamento
- Spain – Ministerio de Sandidad y Consumo
- Sweden – Medical Products Agency
- UK – BSE Inquiry
- UK – Department of Health
- UK – Medicines Control Agency (MCA)
- UK – National Institute for Biological Standards & Control (NIBSC)
- US – Centers for Disease Control and Prevention (CDC)
- US – Department of Health and Human Services
- US – DHHS Advisory Committee on Blood Safety and Availability
- US – Federal Register (daily contents)
- US – Food and Drug Administration
- US – Healthfinder (consumer-oriented DHHS page)
- US – National Institutes of Health
- US – Office of the President
International Patient Organizations
- Alpha I Foundation (Europe)
- European Haemophilia Consortium
- European Organisation for Rare Diseases
- International Patient Organization for C1 Inhibitor Deficiencies (HAEI)
- International Patient Organization for Primary Immune Deficiencies (IPOPI)
- Kawasaki Disease Foundation
- Platelet Disorder Support Association - ITP
- The Guillain-Barré Syndrome Foundation International
Members
- Abbott Diagnostics
- Advanced BioServices, LLC
- Alpine Biologics Inc.
- Baxter BioLife
- Baxter BioScience
- Baxter Tranfusion Therapies
- Bayer Healthcare LLC
- BCA/hemerica
- Biomat USA Inc.
- Biotest Pharma GmbH
- BloodSource
- Cangene Corporation
- Deutsche Gesellschaft für Humanplasma GmbH
- EBPS Blood and Plasma
- Grupo Grifols S.A.
- Haema AG
- Haemonetics Corporation
- Inhibitex
- Internationl BioResources LLC
- Kedrion
- Life Sera, Inc.
- Marketing Research Bureau Inc.
- Nabi
- Octapharma AG
- Ortho-Clinical Diagnostics Inc.
- PlasmaCare
- Pyramid Biological Corporation
- Saturn Biomedical Inc.
- Talecris Biotherapeutics
- The Interstate Companies
- ZLB Behring
- ZLB Bioplasma AG
National Patient Organizations
- Belgium – Belgian Haemophilia Society
- Denmark – Danmarks Bløderforening
- France - Association des Déficitaires en Alpha1 AntiTrypsine (ADAAT)
- France - Association des Malades Souffrant d'Angio-Oedèmes par déficit en C1 inhibiteur (AMSAO)
- France - Immuno-Déficience Primitive Recherche Information Soutien (IRIS)
- France – Association Française des Hémophiles
- Germany - Deustche Selbstfhilfe Angeborene Immundefekte (DSAI)
- Germany – Deutsche Hämophilie Gessellschaft
- Ireland - Alpha-1 Ireland
- Spain – Federación Española de Hemofilia
- Sweden – Förbundet Blödarsjuka i Sverige
- Switzerland – Schweizerischen Hämophilie Gesellschaft/Association Suisses des Hémophiles
- The Netherlands – Nederlandse Vereniging van Hemofilie-Patiënten
- UK - Guillain-Barré Syndrome Support Group
- UK - ITP Support Association
- UK – Hemophilia Society
- UK – Kawasaki Support Group
- UK – Primary Immune Deficiency Association
- US – Alpha 1 Association
- US – Alpha One Foundation
- US – Hemophilia Federation of America
- US – Immune Deficiency Foundation
- US – Jeffrey Modell Foundation
- US – National Hemophilia Foundation
- US – Patient Notification System
- World Federation of Hemophilia
Other Organizations
- American Association of Blood Banks
- American Red Cross
- American Society for Hematology
- America’s Blood Centers
- Biotechnology Industry Organization
- Consortium for Plasma Science
- Drug Information Association
- European Society for Immunodeficiencies
- Eurordis - European Organisation for Rare Diseases
- FullBurner, llc
- International Federation of Red Cross and Red Crescent Societies
- World Health Organisation
Publications of Interest
- British Medical Journal (BMJ)
- Citings Information Exchange
- Journal of the American Medical Association (JAMA)
- Morbidity & Mortality Weekly Report (MMWR)
- New England Journal of Medicine
- PubMed (Medline Search)
- Science
- Scrip
- The Lancet