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U.S. Patient Organizations

Alpha 1 Association

Alpha One Foundation

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Factor Foundation of America

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International Patient Organizations

Alpha I Foundation (Europe)

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International Patient Organization for C1 Inhibitor Deficiencies (HAEI)

International Patient Organization for Primary Immune Deficiencies (IPOPI)

ITP Support Association

Kawasaki Disease Foundation

Platelet Disorder Support Association - ITP

The Guillain-Barré Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International

World Federation of Hemophilia

National Patient Organizations

Belgium – Belgian Haemophilia Society

Denmark – Danmarks Bløderforening

Denmark - Immunodeficiency Foundation

France - Association des Déficitaires en Alpha1 AntiTrypsine (ADAAT)

France - Association des Malades Souffrant d'Angio-Oedèmes par déficit en C1 inhibiteur (AMSAO)

France - Immuno-Déficience Primitive Recherche Information Soutien (IRIS)

France – Association Française des Hémophiles

Germany - Deustche Selbstfhilfe Angeborene Immundefekte (DSAI)

Germany – Deutsche Hämophilie Gessellschaft

Ireland - Alpha-1 Ireland

Spain – Federación Española de Hemofilia

Sweden – Förbundet Blödarsjuka i Sverige

Switzerland – Schweizerischen Hämophilie Gesellschaft/Association Suisses des Hémophiles

The Netherlands – Nederlandse Vereniging van Hemofilie-Patiënten

UK - Guillain-Barré Syndrome Support Group

UK - ITP Support Association

UK – Hemophilia Society

UK – Kawasaki Support Group

UK – Primary Immune Deficiency Association