Resources for Patient Groups
PPTA produces a number of resources to help patients and other stakeholders educate their communities about plasma-derived and recombinant analog therapies (collectively known as plasma protein therapies) and for advocating with policymakers on behalf of patient access. For information about how PPTA works with other organizations, please review the PPTA Charter for Working with External Groups.
- Patient Group Resources - U.S. - This shared resource for U.S.-based consumer groups contains information about key issues facing the users of plasma protein therapies. Please also visit Fact Sheets for quick information about several key topics.
- Several times a year, consumer group stakeholders and PPTA staff meet to discuss issues facing patient access to plasma protein therapies. The following reports capture the discussions at the meetings:
- Six times a year, PPTA publishes a Health Policy Update to keep stakeholders and members apprised of the latest in federal and state health policy issues affecting plasma protein therapies and patient access. Following are the issues from 2009, beginning with the most recent:
- State Handbook - PPTA developed this resource to help consumer groups advocated for patient access in their states and to provide information about key issues facing users of plasma protein therapies.
- Patient Group Resource-- Europe - This web-based tookit has been designed specifically for a European audience by PPTA and the Plasma Protein Users Group as a means to support the group members and to facilitate the development of national patient groups.