Advocacy Toolkit

Overview
	This toolkit provides a one-stop resource for patients and patient groups interested in plasma protein therapies. Access the Patient Notification System, PPTA Fact Sheets, Issue Briefs, and connect with other patient groups and consumer organizations. The toolkit includes a wealth of information resources. An easy to follow format facilitates quick access to PPTA's efforts in both Europe and the U.S. Learn more about the Association's advocacy efforts to ensure patient access to therapies. You may use this information to frame your own advocacy efforts, educate your constituents, and strengthen your communications. If you have any questions or require additional information, contact us!
Resources Access to Care Patient Organizations Patient Information Resources Principles to Advance Patient Access to Care (10/4/2016) PPTA Charter for Working with External Groups
Resources for download Plasma Protein Therapies - Uniquely Saving Lives (Available for Europe and North America) Download for Europe Europe Download for North America North America

Advocacy

PPTA News

New Edition of EDQM Blood Guide Risks Decreasing European Plasma Collection +

28 May 2020 (Brussels) - The Plasma Protein Therapeutics Association (PPTA) is concerned about the recommendations contained in 20th version of Blood Guide of The European Directorate for the Quality of Medicines (EDQM) which aims to harmonise standards and recommendations on blood collection, preparation, and the use of blood and blood components. This Guide, if applied, will have a negative impact on the availability of plasma to develop Plasma-Derived Medicinal Products (PDMPs) for European patients as it fails to distinguish between requirements for transfusable blood components and plasma for manufacturing, especially concerning donor deferrals.
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Wall Street Journal: Letter to the Editor +

Dear Editor,

The article published May 3, “Researchers Explore Using Common Blood-Plasma Treatment to Fight Coronavirus,” calls necessary attention to the importance of intravenous immunoglobulin, IVIG, as a lifesaving therapy for people living with a range of serious, genetic, and chronic conditions. Increased use of IVIG as an untested treatment against COVID-19 risks limiting its availability for those patients whose lives rely on regular access to it. For many of these conditions, IVIG remains the only known treatment.
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PPTA Encourages Plasma Donation +

President Trump made an appeal for plasma donation a few days ago and is echoing what people with serious, genetic, life-threatening diseases already know —plasma donors save lives! Most people had not given much thought to plasma before the recent COVID-19 pandemic. Now, they are learning that plasma from a patient who has recovered from COVID-19 could be used to make therapies to treat others who are sick with the disease and could eventually be used to safeguard health care workers.
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PPTA Applauds Administration for Focus on Plasma Donation +

April 24 — (Annapolis, MD) — The Plasma Protein Therapeutics Association (PPTA) applauds the Administration for comments made during the April 23 White House Coronavirus Task Force briefing in which Americans were encouraged to contact their local plasma donation center to learn how they can help. There are currently more than 800 plasma donation centers across the United States, many of which are now collecting plasma from recovered COVID-19 patients, as well as source plasma relied upon by thousands of people living with serious, rare, and often life-threatening conditions. Donation centers can be found by visiting www.donatingplasma.org.
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The Source, the international magazine of the plasma protein therapeutics industry, is published quarterly.

Learn more about the need for plasma donors, plasma donation, and how you can save and improve lives. Find a Donation Center.

"How Is Your Day?" is an initiative to raise awareness of the unique nature of plasma protein therapies and the value they provide to patients. It aims to inform and educate decision makers and the general public worldwide.

Get involved and follow "How Is Your Day?" on social media @HIYDglobal

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