Advocacy Toolkit

Overview
	This toolkit provides a one-stop resource for patients and patient groups interested in plasma protein therapies. Access the Patient Notification System, PPTA Fact Sheets, Issue Briefs, and connect with other patient groups and consumer organizations. The toolkit includes a wealth of information resources. An easy to follow format facilitates quick access to PPTA's efforts in both Europe and the U.S. Learn more about the Association's advocacy efforts to ensure patient access to therapies. You may use this information to frame your own advocacy efforts, educate your constituents, and strengthen your communications. If you have any questions or require additional information, contact us!
Resources Access to Care Patient Organizations Patient Information Resources Principles to Advance Patient Access to Care (10/4/2016) PPTA Charter for Working with External Groups
Resources for download Plasma Protein Therapies - Uniquely Saving Lives (Available for Europe and North America) Download for Europe Europe Download for North America North America

Advocacy

PPTA News

Yes, you can donate source plasma after getting the COVID vaccine +

Recently, news outlets have suggested that people are not allowed to donate source plasma if they have received either of the two experimental COVID-19 vaccines currently available in the U.S. This is incorrect. Current guidance from the U.S. Food and Drug Administration (FDA) recommends that those who have received one of the available vaccines should not donate convalescent plasma. Healthy and eligible people who have received the COVID-19 vaccine are still encouraged to donate regular source plasma for further manufacture into plasma-derived therapies.
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Treatments for rare diseases at risk, due to the decline of plasma donations +

Representatives of patient advocacy groups, expert physicians, thought leaders, and representatives from the U.S. Food and Drug Administration (FDA) Center for Biologics Evaluation and Research came together on December 9 at a roundtable sponsored by the Plasma Protein Therapeutics Association (PPTA) to discuss the impacts on people with rare diseases if not enough plasma is available to manufacture lifesaving plasma-derived therapies. These therapies are often the only treatments available for people with primary immune deficiencies, bleeding disorders, Alpha-1 Antitrypsin deficiency, hereditary angioedema, and certain neurological conditions.
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Inception Impact Assessment Underlines the Need for Timely Action to Decrease the Reliance on Third Countries for Plasma +

The Plasma Protein Therapeutics Association (PPTA) welcomes the European Commission’s publication of the Inception Impact Assessment (IIA) as a necessary step in the ongoing evaluation of the EU legislation on blood, tissues, and cells (BTC). Rightfully, the assessment underlines the need for timely action to decrease Europe’s reliance on third countries for plasma. We appeal to authorities to urgently take the necessary steps to collect more plasma through plasmapheresis in Europe As highlighted by the European Commission, plasmapheresis is a more efficient collection method compared to the collection of recovered plasma.¹
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PPTA Statement on the Urgent Need for Plasma Donation +

COVID-19 continues to present a prolonged, global public health emergency, but PPTA remains steadfastly committed to its mission to promote the availability of — and access to — safe and effective plasma protein therapies for all patients. PPTA member companies operate more than 1,000 Source plasma donation centers in the U.S. and four countries in the European Union and manufacture plasma-derived therapies that treat patients with serious, rare, and often genetic diseases and disorders, including: primary immune deficiencies, bleeding disorders, Alpha-1 Antitrypsin deficiency, hereditary angioedema, and certain neurological conditions. These conditions are often only treated with therapies produced from plasma.
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The Source, the international magazine of the plasma protein therapeutics industry, is published quarterly.

Learn more about the need for plasma donors, plasma donation, and how you can save and improve lives. Find a Donation Center.

"How Is Your Day?" is an initiative to raise awareness of the unique nature of plasma protein therapies and the value they provide to patients. It aims to inform and educate decision makers and the general public worldwide.

Get involved and follow "How Is Your Day?" on social media @HIYDglobal

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Advocacy

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