Advocacy Toolkit

Overview
	This toolkit provides a one-stop resource for patients and patient groups interested in plasma protein therapies. Access the Patient Notification System, PPTA Fact Sheets, Issue Briefs, and connect with other patient groups and consumer organizations. The toolkit includes a wealth of information resources. An easy to follow format facilitates quick access to PPTA's efforts in both Europe and the U.S. Learn more about the Association's advocacy efforts to ensure patient access to therapies. You may use this information to frame your own advocacy efforts, educate your constituents, and strengthen your communications. If you have any questions or require additional information, contact us!
Resources Access to Care Patient Organizations Patient Information Resources Principles to Advance Patient Access to Care (10/4/2016) PPTA Charter for Working with External Groups
Resources for download Plasma Protein Therapies - Uniquely Saving Lives (Available for Europe and North America) Download for Europe Europe Download for North America North America

Advocacy

PPTA News

PPTA Statement on Immunoglobulin Access +

Recent media reports have described access issues regarding immunoglobulin (Ig) therapies relied on by people living with primary immunodeficiencies. The Plasma Protein Therapeutics Association (PPTA) is aware of these reports and is working with advocate groups, regulators, and member companies to identify solutions and ensure people can continue treating these serious conditions.
Read More
IQPP Standards Public Review Period Now Open! +
The following draft has been issued for a second public review:
- Version 4.0 of the IQPP Qualified Donor Standard
In accordance with the procedures for developing PPTA Voluntary Standards, this document is hereby issued for public review, from July 29, 2019 until September 27, 2019. This is a proposed revision to Version 4.0. (A previous version of the draft was issued for public review from April 18 until June 16. The PPTA IQPP Standards Committee reviewed all comments received and agreed to resolutions. Because resolution to some of the public review comments resulted in substantive changes to the draft, it was decided to issue a new public review of the revised draft.)
Read More
Immunoglobulin Access +

Recently, several media outlets have reported on access issues regarding immunoglobulin (Ig) therapies relied on by people living with primary immunodeficiencies.^{1, 2, 3} The Plasma Protein Therapeutics Association (PPTA) represents the private collectors of plasma and the manufacturers of plasma-derived therapies that treat rare, serious, genetic, and — in many cases — life-threatening diseases caused by missing or nonfunctioning proteins typically found in plasma.
Read More

1
2
3

› ‹

The Source, the international magazine of the plasma protein therapeutics industry, is published quarterly.

Learn more about the need for plasma donors, plasma donation, and how you can save and improve lives. Find a Donation Center.

Membership

Plasma Products Databases

Media and Information

Advocacy

Copyright © 2018 PPTA. All rights reserved. (202) 789-3100

Terms of Use | Privacy Statement | Sitemap