Advocacy Toolkit

Overview
	This toolkit provides a one-stop resource for patients and patient groups interested in plasma protein therapies. Access the Patient Notification System, PPTA Fact Sheets, Issue Briefs, and connect with other patient groups and consumer organizations. The toolkit includes a wealth of information resources. An easy to follow format facilitates quick access to PPTA's efforts in both Europe and the U.S. Learn more about the Association's advocacy efforts to ensure patient access to therapies. You may use this information to frame your own advocacy efforts, educate your constituents, and strengthen your communications. If you have any questions or require additional information, contact us!
Resources Access to Care Patient Organizations Patient Information Resources Principles to Advance Patient Access to Care (10/4/2016) PPTA Charter for Working with External Groups
Resources for download Plasma Protein Therapies - Uniquely Saving Lives (Available for Europe and North America) Download for Europe Europe Download for North America North America

Advocacy

PPTA News

Karen Etchberger Elected Chair of PPTA Global Board of Directors +

Annapolis, MD (January 13, 2020) —The Global Board of Directors of the Plasma Protein Therapeutics Association(PPTA) elected Karen Etchberger of CSL Behring as its Chair, effective January 2020. Dr. Etchberger will serve a three-year term and succeeds outgoing Chair, David Bell, Grifols S.A.
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Fabrizio Fabbrizzi – 10 April 1955 - 2 January 2020 +

The new year has started badly. Fabrizio Fabbrizzi, one of the most respected and beloved stalwarts of the plasma products landscape, passed on 2 January 2020 after a brief struggle with a serious illness. Fabrizio was born in Barga, Tuscany on 10 April 1955 and graduated in medicine and surgery at the University of Pisa in 1981.
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PPTA Statement on H.R. 3 +

On December 12, the U.S. House of Representatives passed H.R. 3, “The Lower Drug Costs Act,” sponsored by Energy & Commerce Chairman, Rep. Frank Pallone, D- NJ. This bill, known as Speaker Pelosi’s drug plan, would put at risk patients with rare diseases who rely on access to plasma protein therapies.
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