Advocacy Toolkit

Overview
	This toolkit provides a one-stop resource for patients and patient groups interested in plasma protein therapies. Access the Patient Notification System, PPTA Fact Sheets, Issue Briefs, and connect with other patient groups and consumer organizations. The toolkit includes a wealth of information resources. An easy to follow format facilitates quick access to PPTA's efforts in both Europe and the U.S. Learn more about the Association's advocacy efforts to ensure patient access to therapies. You may use this information to frame your own advocacy efforts, educate your constituents, and strengthen your communications. If you have any questions or require additional information, contact us!
Resources Access to Care Patient Organizations Patient Information Resources Principles to Advance Patient Access to Care (10/4/2016) PPTA Charter for Working with External Groups
Resources for download Plasma Protein Therapies - Uniquely Saving Lives (Available for Europe and North America) Download for Europe Europe Download for North America North America

Advocacy

PPTA News

PPTA Responds to ProPublica Article +

An article published by ProPublica on June 24 (“The U.S. Is Closing a Loophole That Lured Mexicans Over the Border to Donate Blood Plasma for Cash”) is the latest sensationalized reporting from ProPublica and ARD German TV reporters who continue to misrepresent and malign U.S. policies regarding plasma donation as well as the scores of committed individuals who cross the U.S.-Mexico border to donate their plasma. Tens of thousands of people safely donate their plasma every day in the U.S., with every donation directly contributing to helping nearly 125,000 Americans with serious and often life-threatening conditions live healthy and normal lives, as well as countless others facing trauma and emergency medical needs every day.
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EU Health Commissioner says plasma donation plays a vital role +

June 14, 2021 (Brussels, Belgium) – The Plasma Protein Therapeutics Association (PPTA) is proud to mark World Blood Donor Day. This day is an opportunity to specifically thank plasma donors, as well as blood donors, and recognize their shared commitment and contributions to saving and improving the lives of patients in Europe.
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Study Shows Immunoglobulin Therapy is “Critical and Cost-Effective” in Treating CVID +

The journal publication, “Immunoglobulin Replacement Therapy is critical and cost-effective in increasing life expectancy and quality of life in patients suffering from Common Variable Immunodeficiency Disorders (CVID): A health-economic assessment,” is authored by Professor Philippe van Wilder with the Université libre de Bruxelles and Professor Esther de Vries of Tilburg University and offers a health economic model to estimate the value of treatment with IG therapy for CVID patients.
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New position statement by CHMP regarding donor deferral criteria for sexual behaviour helps assessment of PMFs +

The International Plasma and Fractionation Association and the Plasma Protein Therapeutics Association are pleased with the recent publication by the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) "CHMP Position statement on quality and safety assessment for the Plasma Master File (PMF) certification with regard to donor deferral criteria for sexual risk behaviour," as such a position was highly needed, especially regarding men-having-sex-with-men (MSM). It clarifies that the application of these nationally defined deferral periods will from now on also be considered when assessing appropriateness of locally collected plasma to be included in a PMF.
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The Source, the international magazine of the plasma protein therapeutics industry, is published three times a year.

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