Patient Organizations Join Forces with Industry
Annapolis, MD—The Plasma Protein Therapeutics Association (PPTA) and its member companies are sponsoring International Plasma Awareness Week, October 13-20, designed to:
- Raise global awareness about source plasma collection
- Recognize the contributions of plasma donors in saving and improving lives
- Increase understanding about lifesaving plasma protein therapies and rare diseases
Patient organizations representing users of plasma protein therapies have pledged their support and are working to promote the event via websites, newsletters, social media and outreach. These include: the Alpha-1 Association, GBS/CIDP, Hemophilia Federation of America, the Immune Deficiency Foundation, the International Patient Organization for Primary Immunodeficiencies, National Hemophilia Foundation and Primary Immunodeficiency UK.
Plasma protein therapies, which include plasma-derived therapies and recombinant analogs, are used to treat chronic, life-threatening diseases including bleeding disorders, primary immune deficiencies, alpha-1 antitrypsin deficiency and certain rare neurological disorders. In addition, these therapies are used in emergency and surgical medicine.
“All of the member organizations of the American Plasma Users Coalition (A-PLUS) greatly appreciate PPTA making the public aware of the importance of the collection of plasma from the tens of thousands of voluntary donors and the manufacturers of plasma therapies which provide lifesaving treatments for our patients,” said A-PLUS spokesman, Larry LaMotte.
“We are delighted to have the support of so many patient organizations. Their participation is key in helping us achieve our goal “to increase understanding about lifesaving plasma protein therapies and rare diseases”. By sharing their personal experiences patients are able to convey the impact of living with a rare disease in a meaningful way. It is their stories that inspire my colleagues and me each day,” said Joshua Penrod, PPTA, Vice President, Source.
Plasma, a biological material derived from humans, is used to create lifesaving therapies. There are over 450 plasma collection facilities in Canada, Austria, the Czech Republic, Germany and the U.S. In addition to meeting regulatory requirements, the majority of these centers have achievedInternational Quality Plasma Program(IQPP) certification. PPTA’s voluntary standards program provides global leadership for the industry’s goal of continuous improvement with a focus on safety and quality from the donor to the patient.
About the American Plasma Users Coalition (A-PLUS)
A-PLUS is a coalition of U.S. national patient organizations created to address the unique needs of patients with rare diseases that use life-saving plasma protein therapies. The coalition represents more than 125,000 Americans living with chronic disorders who depend upon plasma protein therapies to lead healthy, productive lives. Alpha-1 Association, Alpha-1 Foundation, GBS/CIDP Foundation International, Committee of Ten Thousand, Hemophilia Federation of America, Immune Deficiency Foundation, Jeffrey Modell Foundation, National Hemophilia Foundation, Patient Services Incorporated, Platelet Disorder Support Association and the U.S. Hereditary Angioedema Association.
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